Flare

another London trip

So unfortunately Aaron's symptoms did not settle down and increased too. He is now having several motion a day all with blood. He had an early infusion at a 6 rather than 8 week gap, this sadly did not have any effect, they do hope another infusion, again in 6 weeks might still help, i'm not convinced...
However, in the meantime, since his calprotectin level (stool inflammation marker) has shot up, confirming his flare, his GI has agreed to try an antibiotic as due to the previous positive effect. It is the one that is a pain as he takes it as a liquid so it has to be drawn up from injection vials but can be taken orally. Due to its slightly off-label usage, we had to collect from London rather than locally, which meant that was how Tom spent his day off, rather than helping me finalise the school Christmas fair I had been organising for that day.

our house before the fair

It has been a very tiring and stressful patch, with also, last weekend, Aaron's party to plan and a trip to Oxford for a Crohns information day.

Aaron is 8

Children in Need mad hair day