26 Oct 2018

New school year

So Aaron is now a Junior, in year 3, Josh is in his final year of Primary school and Ethan is in his his GCSE options year!
This half term has been extremely busy, in fact this tab has been open for weeks waiting for me to have time to update things! There seems to be constant demands on our time every week, having us running between commitments (like PGL camp, school trips, sleepover at school, meetings, events I organise etc etc!)
plus its been a busy half term of medical appointments too;
Ethan has started orthodontic treatment with a temporary brace expander only so far. He also had a nasty sinus infection which spread to his eye, leaving him sitting in the dark in pain until we managed to get antibiotics, and totalled a week off school.
Josh is still off his medications, but he is quite unsettled tummy wise, so we will see how he gets on, we may well need to go back onto something.


Aaron has had several appointments, most of which are in London so take up several hours, one was a shared one with Josh. He has also had a colonoscopy due to increased symptoms earlier this year, which had settled, it was also a year since starting the Vedo so they like to look and see how it is working. It was a busy few days of laxative clear out and anaesthetics etc, but results were good, still showing very obvious Crohns but no active inflammation, which was what we were hoping as since June the symptoms had settled again. However since then, in the last few weeks, he has started to have diarrhea and bleeding again, this has not been stopped by the infusion so we are watching and waiting and hoping before making any plans, as it is still mild so far. He has also, as mentioned, had medication infusion days.
We have really kicked back and tried to relax this half term whilst having fun,
the period of all the boys birthdays plus Christmas have just started with Josh's party last Friday and actual birthday tomorrow.

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