So, not much changed, the meds worked and Aaron improved but declined again as soon as they were finished, so they decided to put him back on them so we picked up another batch just before Christmas and again they did the trick, so at his first infusion of the year they decided to keep him on them for another month totalling 6 weeks. We have just stopped again and are holding our breath to see what happens next. Its nice to have a break from the making it all up from vials with needles, administering it 4 times a day and the endless tooth brushing as it stains his teeth 10 times more yellow than a month of not brushing at all! His infusion is in 10days , still at the reduced 6 weekly interval, so we are all hoping this keeps things ok.
Here are some slightly late seasonal snaps!
Here are some slightly late seasonal snaps!
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| Christingle service |
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| Emma Bunton at GOS party |
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| Steven Mulhern at GOS party |
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| wettest Christmas outing ever! |
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| getting dry again |
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| @GOS for infusion day |
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