So the new year started busy as usual, Ethan's audiology appointment resulted in the return of his hearing aid but this time 2 not 1, His results were the lowest they had been since his last grommets age 6, We are hopeful though that they will clear again having done so before. Ethan was not keen on having the hearing aids back but coped fine on the day, and it has made such a big difference I think he really appreciates them now.
He also turned 11, wow!
Josh's rheumatology appointment showed little improvement in his muscle strength and still very hypermobile especially in his hands. The suggestion is still that he goes in for 2 weeks intensive physio but there is a 6 month + wait on this, which is probably just as well as Aaron is needing our attention at the moment.
Aaron had his endoscopies (upper, lower and capsule) as planned, after a slightly better time over Christmas but not much. A busy few days of bowel clear out, tests and bravery, showing on going active inflammation, which is what we thought. He started his new injection treatment whilst under anaesthetic for the scopes, next week he has his 1st conscious ones which we hear are pretty painful.
He also turned 11, wow!
Josh's rheumatology appointment showed little improvement in his muscle strength and still very hypermobile especially in his hands. The suggestion is still that he goes in for 2 weeks intensive physio but there is a 6 month + wait on this, which is probably just as well as Aaron is needing our attention at the moment.
Aaron had his endoscopies (upper, lower and capsule) as planned, after a slightly better time over Christmas but not much. A busy few days of bowel clear out, tests and bravery, showing on going active inflammation, which is what we thought. He started his new injection treatment whilst under anaesthetic for the scopes, next week he has his 1st conscious ones which we hear are pretty painful.



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