new foods

So he is now having rice in its many forms (who knew there were so many; rice boiled, rice noodles, can't find the rice past though, rice cakes, ground rice and baby rice! getting a bit boring though) also turkey/ chicken, carrots and pear. He is also being supplemented by the formula, whatever he'll take orally, and via the tube a couple of times a day.

yummy rice noodles

Today we added maize as that gives us more breakfast choice. He seems to be doing ok with this (boredom, rather have a tube feed, and lacking enough calories aside), except he is now constipated instead, resulting in LOTS of tears Monday when he finally managed to 'go' after nothing since the previous Tuesday :( some blood again, hoping it was just from the effort of going, nothing more..... back for tests in 2 weeks.

Josh too has not been having a great time of it, he is wetting the bed fairly often and having quite a bit of diarrhea typically at inconvenient times when out and about such as at nice trips to National Trust places, and even having to take some of it home in picnic pots when it needs testing, ho hum... and last weekend a big accident which we think contained blood again, so another sample plus waiting around in A+E.

Aaron is also needing to see the dentist as the medicine he takes is caking around his lower teeth and will possibly need scraping off, but she was reluctant to do it at his first visit.

Ethan had a hearing aid appointment (again back to St Helier) this afternoon, she spent an hour adjusting settings to better suit him, but he still relies a fair amount on lip reading the tests showed.

"roast"

The rest of the time i seem to spend chasing GP/pharmacy/referals/appointments! and cooking everything in triplicate - normal and nice and tasty for 3 of us, minus egg/dairy for Josh and something based around rice for Aaron, even a simple glass of milk is trickier than it should be!