too tired to post properly so will update the site soon with full info. however ultra sound last week was stressful but no change; so no re-growth for now. gastro yesterday was delayed by 2 1/2 hrs, plus saw reg not normal dr, and now gluten egg and choc free on top of the dairy and soya. they seemed to just throw ideas at us, didn't feel like he was treated as a real child and review in 6 months
CURRENT DIAGNOSIES: JOSH: lymphangiomatosis, lymphonodular hypoplasia, milk/soya/nut IgE allergy RUTH: Postural Orthostatic Tachycardia current meds :thyroxine, bisoprolol betablocker AARON: Crohns, vedolzumab, prednisolone, omeprazole (ever changing!) ETHAN: mild hearing loss from glue ear,sometimes uses a hearing aid
21 Jan 2010
tired
too tired to post properly so will update the site soon with full info. however ultra sound last week was stressful but no change; so no re-growth for now. gastro yesterday was delayed by 2 1/2 hrs, plus saw reg not normal dr, and now gluten egg and choc free on top of the dairy and soya. they seemed to just throw ideas at us, didn't feel like he was treated as a real child and review in 6 months
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