So initial results of the MRI showed they'd like to do a transit study - this involves taking laxatives and then some marked pellets and then an xray. It transpired that this was due to the MRI showing Josh was 'impacted', the laxatives have not had the desired effect so after 3 weeks of them the plan was made to move onto something stronger, so tomorrow he goes into our local hospital and will have an ng tube to accomplish this. He's not too keen but can't really remember it from so long ago. We have been there this afternoon/early eve to get the basics done( bloods, paperwork etc), but allowed home over night. We may or may not need to stay a further night.
Aaron has started a different medication in conjunction with his injection - methotrexate. This is oral initially but can be via weekly injection also. This is low dose chemotherapy and can make you feel queasy etc. 2 doses in (weekly) he is ok with side effects just mild for the moment but might build as time goes on, no improvements yet, if this morning is anything to go by a little worse again and this mornings blood test showed slight anaemia and increased inflammation
Aaron has started a different medication in conjunction with his injection - methotrexate. This is oral initially but can be via weekly injection also. This is low dose chemotherapy and can make you feel queasy etc. 2 doses in (weekly) he is ok with side effects just mild for the moment but might build as time goes on, no improvements yet, if this morning is anything to go by a little worse again and this mornings blood test showed slight anaemia and increased inflammation
Picture from the CCUK day we went to on Sunday
UPDATE: A long tearful couple of days cleared Josh out so he could begin to take the pellet markers for an xray. His bowel is still settling down yet on the 1st xray they had not all been 'passed' so we went back for a 2nd xray a few days later
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| very sore |
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| but brave by the next day |



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