half term

What a busy half term! Josh is feeling 99% better energy wise so we were able to do all we planned to; legoland, minitrains day, polesden lacey, shalford mill day, london eye day out with GOS, and wisley!

He still has diarrhea daily or more(42 times last month :)), but is managing it amazingly, it does make him feel woozy though.

unfortunately he now has another bug, a viral high temperature thing which Aaron caught 1st but Josh seems to have worse, so is back to not eating so well and sleeping in the day.

Our appointment at GOS was as expected; he is healing well, the bumps are stitches you can see as he is so thin. the biopsies were essentially normal, there were a lot of these adhesions which they removed and they feel they were the cause especially now that his episodes have stopped (none for 6 weeks - longest period for a year), the bowel is still settling down after being 'tethered' hence the continuing diarrhea.

we have a gastro appointment beginning of July, pediatrician appointment beginning of August and more surgical follow up beginning of October - september a month off!!!