this month Josh's pains have been there daily niggling at him and then occassionally a flare up. Yesterday was one of those, he was ok during the day but some diarrhea, then just before tea started to get squirmy, couldn't manage hardly any tea and kept getting worse, then was ok for a patch and managed a bath which i thought might help, but by mid evening i was up and down the stairs like a yo-yo again as he kept being woken and crying. Then just after i had given Aaron is last feed josh cried very loudly and said he was going to be sick, unfortunately we were too late so lots of washing for me today, but after that he settled for the night. Today he has been fine, just not eating huge quantities and tired enough for a lunch time nap. 17 days til laparoscopy.....
CURRENT DIAGNOSIES: JOSH: lymphangiomatosis, lymphonodular hypoplasia, milk/soya/nut IgE allergy RUTH: Postural Orthostatic Tachycardia current meds :thyroxine, bisoprolol betablocker AARON: Crohns, vedolzumab, prednisolone, omeprazole (ever changing!) ETHAN: mild hearing loss from glue ear,sometimes uses a hearing aid
1 Apr 2011
here we go again
this month Josh's pains have been there daily niggling at him and then occassionally a flare up. Yesterday was one of those, he was ok during the day but some diarrhea, then just before tea started to get squirmy, couldn't manage hardly any tea and kept getting worse, then was ok for a patch and managed a bath which i thought might help, but by mid evening i was up and down the stairs like a yo-yo again as he kept being woken and crying. Then just after i had given Aaron is last feed josh cried very loudly and said he was going to be sick, unfortunately we were too late so lots of washing for me today, but after that he settled for the night. Today he has been fine, just not eating huge quantities and tired enough for a lunch time nap. 17 days til laparoscopy.....
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