3 weeks and counting

3 weeks today since Josh had a major episode, although he was a little uncomfortable today and with diarhea too.

He had an appointment at GOS with the surgical team who have decided that a laparoscopy is the way to go. they will do this as exploratory surgery to see if they can see the cause of the problems (its a keyhole scope with camera through his tummy button) if there is too much scar tissue from previous surgery they may not be able to, and if they see a problem area they will 'correct' it so we will also need to sign surgery permission forms. This is scheduled for 12th April. We were pleased they appear to be listening but are concerned for him to go through this. However they said, when asked what if he has no more problems before then, that then in that case they would postpone (not cancel) and then review again nearer that date. They will not do this lightly as it could also cause problems due to more scarring and it is after all surgery with general anaesthetic and all the risks involved. Our hope is that he will continue to be well but if he is not then we will feel more confident in going ahead.

We finished the day with a trip to the Natural History museum and then a meal out getting home at 9pm with 2 tired boys!

Meanwhile Aaron had his scheduled scan due to his feeding gripes and Josh's history, during which they found what they thought was a duplex kidney but no reflux. They referred us to another local hospital for a second opinion who confirmed this was the case and infact that he did have quite considerable reflux. However my understanding is that it looked otherwise ok and unless he has a urine infection they will not test further, and that i am to take urine samples if he appears unwell. His medicenes are for review to help him be more settled with the reflux. it was for a while another worry, but we feel mostly reassured that it will not be an issue just somehting to have in the back of our minds.