Another sucessful appointment for the week, and the first in a long time for Josh.
it seemed none of the information from his recent A+E event and Epsom/my phone calls had reached them, so we had been put on the registrar's list but managed to sucessfully request to see our consultant. we then filled her in on his ongoing diarrhea, and more recent severe tummy pains. She was concerned to hear this and Prof.Pierro happened to be at the clinic to see another of her patients so she got him to come in and be part of the discussion. It was great for him to be able to explain verbally face to face about the surgery and how widespread the condition was in his small bowel mesentery and how it had to be left in situ as it was too tangled with blood supply to the bowel and benign so better to be left there. They confirmed that the pain could be caused by adhesions (scar tissue) from the surgery, twisting, obstruction issues, and they would need to do more tests to see. If the tests show nothing then they had some other ideas to test for, if they show obstruction then we may have to consider more surgery.
So on the 5th August he is to have an Ultrasound and an upper Gi study which is series of xrays with barium contrast to enable them to see the bowel more clearly.
he is also to continue with his food exclusion diet until we know what else is going on. He has a referal to the acute allergy clinic for his peanut allergy. and he has a new medicene to try to help with the colitis type symptoms.
so in all a really thorough appointment and we feel that Josh is being taken care of.
All this is due of course to the fact that the episodes of pain (where he cannot hold his head up and gets very sleepy after) are getting more frequent; including today after a bad nappy day he went from fine helping with the shopping to me calling my Mum to give me a hand in the carpark as he was doubled up in my arms
it seemed none of the information from his recent A+E event and Epsom/my phone calls had reached them, so we had been put on the registrar's list but managed to sucessfully request to see our consultant. we then filled her in on his ongoing diarrhea, and more recent severe tummy pains. She was concerned to hear this and Prof.Pierro happened to be at the clinic to see another of her patients so she got him to come in and be part of the discussion. It was great for him to be able to explain verbally face to face about the surgery and how widespread the condition was in his small bowel mesentery and how it had to be left in situ as it was too tangled with blood supply to the bowel and benign so better to be left there. They confirmed that the pain could be caused by adhesions (scar tissue) from the surgery, twisting, obstruction issues, and they would need to do more tests to see. If the tests show nothing then they had some other ideas to test for, if they show obstruction then we may have to consider more surgery.
So on the 5th August he is to have an Ultrasound and an upper Gi study which is series of xrays with barium contrast to enable them to see the bowel more clearly.
he is also to continue with his food exclusion diet until we know what else is going on. He has a referal to the acute allergy clinic for his peanut allergy. and he has a new medicene to try to help with the colitis type symptoms.
so in all a really thorough appointment and we feel that Josh is being taken care of.
All this is due of course to the fact that the episodes of pain (where he cannot hold his head up and gets very sleepy after) are getting more frequent; including today after a bad nappy day he went from fine helping with the shopping to me calling my Mum to give me a hand in the carpark as he was doubled up in my arms
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