no dairy or soya/GOS trip

we went to GOS for our appointment at long last, and got the results of our capsule endoscopy. Good news in that there was no internal lymphatic malformations, but there were the same enlarged nodes inside the bowel they saw last time and have seen outside the bowel on ultrasound. Lymphonodularhypoplasia! This could be his condition, but they are going to try out whether it is a food allergy, as this would be easier to deal with. so for the next 2 months (or until we go back which last time ended up being 6 months as she gets so booked up) we are going to be strictly dairy and soya free(positive blood result for allergy to these). this is in a lot of places you wouldn't suspect, like all the sliced bread i looked at, and soya in most the dairy alternatives. i'm sure i'll get the hang of it, and that Josh will start to enjoy his oat milk (and that wasn't meant to be goat!). our concerns are getting enough iron and calcium into him, and keeping up the calorie intake, both of which he was getting from cheese and yogurt as he doesn't drink much milk. the hope is the rashes and diarrhea are connected to this. the chocolate could be a ''secondary allergy" caused by having an irritated gut.

She also agreed with the GP who thought it could be like having permanent mesenteric lymphadenitis which is common in children and causes tummy ache etc, but you wouldn't normally have it more than maybe once.

She thinks he needs the swine flu vaccine as this has been found to have a severe effect on patients with bowel troubles, but not the tamiflu if possible as this is irritating to the bowel.

On a more positive note he really enjoyed his 2nd birthday party yesterday, and has some lovely new presents to play with (and Ethan is happy about this too!)