ultra sound

Today went well. 'Grandma' and I took Josh up for his ultra sound and surgical follow up. On the scan they could see nothing!!! from such a large mass each time before this was a shock. The follow up with the surgical team confirmed that they did leave some of the mass there as they had said but this would not be visible on ultra sound. The only finding was a thicker mesentery, perhaps scar tissue (which apparantly may be of interest to the gastro lot). They plan to review him again in a year and will leave him with Gastro to diagnose until then. i guess there will be reviews for awhile as there is the chance this mass could regrow, but we feel there is some sort of remission as it were. so nice to have a positive appointment.

in himself he is doing well. After the IV fluids he really seems to have filled out, he is eating well too and has regained the 9th centile, putting on a kilo in 10 days! He is now constipated (for a change!) and has been up crying with tummy ache this evening



on a different note those of you in the loop will know i have been having palpatations, and after a couple of ECG's they have decided that it is a sinus node disorder that is causing an irregular beat and a condition called postural orthostatic tachycardia (raised heart rate with change of position). this is not worrying in anyway he said but the heart does not beat very efficiently so most likely accounting for the fatigue i'm feeling. i have an anti-arrythmic medicene to try.