The new year

As some of you know already we have a very busy January coming up with lots of doctors visits.

I have a cardio Dr appt on the 5th Jan and a blood pressure monitor on the 8th due to a rapid pulse SVT apparantly, nothing to panic about but does make me feel exhausted doing very little!

Josh is lucky enough to have been given a slot to see a visiting Dr from New York on the 9th, who by all accounts is the expert on lymphatic malformations (as well as haemangiomas). We do have to travel to Alderhey to see him, but we feel that it will be worth it, and is a great opportunity.

On the 14th we have our gastroenterology referal as i think i mentioned in the last post, but we are more and more interested in their thoughts, as to why he seems to get diarrhea when he is ill.

At the moment Josh is sufferng from a cough left oer from a cold with temperature spikes. this as been putting him off his food for the past 3 weeks or so and this combined with the diarrhea has resulted in quite significant weight loss, the most since he was initially diagnosed and thats including during the problems of the summer and post surgery.

So all this along with a few other appointments is creating a very busy January!

Merry Christmas